I have often wondered if it is harder being a patient or is it harder being an observer/caregiver. In all honesty, I don't know albeit I have often felt that I would rather endure the pain than watch your loved one wrestle with it. Having a child with a congenital disorder can be a lifelong teaching lesson and it does not get any easier over time. You might get used to the procedures and terminology but you pay a heavy emotional toll on every episode. Yet, I sit here and watch with admiration the many people around me with kids who have ailments that you may have never heard of and their stoic parents who toil day and night to care for their children. It is a humbling experience to say the least.
Last week, I got a chance to meet a mom with a toddler in tow. They were being driven back to the Holiday Inn from Cincinnati Childrens Hospital in the free taxi that the hotel provides (amazing how generous can people be). The little girl was the cutest thing and reminded me of little Priya of 18 years past. Well, we had a nice conversation with the mom and found out that they were regular visitors from New Mexico and the little girl is Hanna and her wonderful story is chronicled on the Ronald McDonal website. Take a gander if you want to read a true heartwarming story. I guess there is so much depth and beauty among so much pain and there are stories like this everywhere. I am watching life unfold in front of me and I smile and cry at the same time. http://www.rmhcincinnati.org/family-stories-details.aspx?ItemID=138
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